Endless thanks to the Utah Chapter of the Make-A-Wish Foundation for sending our family to Maui to honor Rogan's wish. With all that we have going on.. and with the continued costs of Rogan's cancer treatment... this trip was definitely NOT in the budget. We are forever grateful... and it will exactly what our family needs.
The Foundation will handle the big expense of getting there + 1 week of accommodations... and a few awesome activity's that Rogan will flip out on... submarine ride, glass bottom boat tour, etc. She's already obsessed w/ water and has little to no fear. Need to book swim lessons pronto!
Please read further about what this incredible organization is doing for families across the state.
I've set up a page for their latest fundraiser to make donations in Rogan's name. Please donate if you are so compelled. Thank you.
Blog:
http://www.makeawishfoundationofutah.blogspot.com/
Fundraiser:
http://duckyderby.kintera.org/faf/r.asp?t=3&i=425937
Donate ducky's in Rogan's name!
http://duckyderby.kintera.org/faf/donorReg/donorPledge.asp?ievent=425937&supId=296659264
Tuesday, July 13, 2010
Monday, July 12, 2010
M A U I
Please come to Maui if you can... to celebrate GO ROGAN. We are staying at the Lahaina Hyatt from Nov 1 - 14. Below is our flight info... if you'd like to travel with us.
Here are the girls, training for Maui. The water looks inviting... but it's not. It's take-your-breath-away ice-melt. We can't wait.
Note Rogan's over-sized, inflatable Seal... named "Cupcake-cha".
Here are the girls, training for Maui. The water looks inviting... but it's not. It's take-your-breath-away ice-melt. We can't wait.
Note Rogan's over-sized, inflatable Seal... named "Cupcake-cha".
7.12.10
Big day last Thursday w/ Rogan's 2nd to last LP (lumbar puncture)! Logistically; it was seamless... emotionally; it just doesn't get easier... ever. We had requested Sean... the vein ninja, to set the IV... & he got it 1st go. Stoked. I still cried though & was to rattled to be able to thank him profusely w/ words. Sean, if you are reading this; THANK YOU. You are a hero... and we can only hope to get you for the remaining IV's.
Rogan's blood counts are right where the docs want them right now. Her ANC (bacteria & virus fighting cells) are low... but luckily it's Summer time and there aren't too many bugs circulating.
Waiting room for her LP... setting an IV in her doll:
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