Wednesday, January 19, 2011
"Normal"… disease free living. Ahhhh….
On September 30th 2010, Rogan received her final IV Chemo & Lumbar puncture.
The crew on hand of docs & nurses surprised her with a graduation goodie bag:
30 days later was her final oral chemo. It was evening time & Casey was at the store. I set up shop; mush with bananas, milk, water & and the daily dose / array of chemo pills… approximately 5 or 6. Split emotions: joyous relief VS disgust. I don't even like to take Advil. I took a picture of the pills, cried, gave them to Rogan, explained to her what this meant & took a few pictures & videos of her:
The Make-A-Wish Foundation helped us get to Maui to celebrate Rogan's life. Friends & family made the trip as well & we pulled off the vacation of a lifetime. Thank you.
Rogan turned 4 yesterday. She is amazing. We are truly blessed to be surrounded by family & friends that supported us through this… and celebrate every day. RESPECT.
Last Summer, our good friend Jerry Ricciotti, along with his brother Danny & cousin Joe; road bicycles across the nation to raise awareness for Rogan's fight and to raise funds to assist us with her medical bills. Forever grateful.
Jerry came to visit us last week... delivered Elmo & Cookie Monster kits for the gals and thankfully shot some priceless photos & video. What a hero.
Wednesday, August 18, 2010
2nd week for Maui is booked! If you are thinking about joining us… this is where we are staying 11/7 - 11/14. http://www.vrbo.com/58187 Puamana, Lahaina. On the water…kid-friendly beach... and still close to town. Should be a blast.
… and 11/1 - 11/7 we are staying at the Hyatt. "Crawford" reservation. CLICK HERE!
… took Rogan on a date last week. It was pretty special to have her all to ourselves. Steven came too. Steven is one of Rogan's children. Steven is a female Koala bear who occasionally bites people. Rogan told us at dinner that Steven listened to her Mom yesterday and didn't bite… so she got a "listening star" for her "star chart". Oh.
Rogan likes Banksy:
Wednesday, August 4, 2010
DONATE A DUCKY IN ROGAN'S NAME:
Monday, August 2, 2010
Tuesday, July 13, 2010
The Foundation will handle the big expense of getting there + 1 week of accommodations... and a few awesome activity's that Rogan will flip out on... submarine ride, glass bottom boat tour, etc. She's already obsessed w/ water and has little to no fear. Need to book swim lessons pronto!
Please read further about what this incredible organization is doing for families across the state.
I've set up a page for their latest fundraiser to make donations in Rogan's name. Please donate if you are so compelled. Thank you.
Donate ducky's in Rogan's name!
Monday, July 12, 2010
Here are the girls, training for Maui. The water looks inviting... but it's not. It's take-your-breath-away ice-melt. We can't wait.
Note Rogan's over-sized, inflatable Seal... named "Cupcake-cha".