Tuesday, February 24, 2009

MAINTENANCE!....really...

... BIG MILESTONE for Rogan last Thursday!  Her ANC finally recovered and we graduated into MAINTENANCE officially.  She had a 1 week delay because her ANC counts were too low.... due to the harsh chemo from DELAYED INTENSIFICATION.
.... not quite sure if it's physically possible to be more proud of someone. Thursday clinic she received an LP (lumbar puncture) and her IV chemo.  At home she is is on the steroid for the 1st five days of each month, an oral chemo every day and her anti-pneumonia.... a ton of work for Mama... but thus far, relatively easy on Rogan. 
She has a killer art kit from her Auntie in Philly and loves to color and paint.

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Here's a roll of shots from the past 2 weeks:
Watching early AM cartoons (coons) and updating her FaceBook status via iPhone. Coco sampling her new-found motor skills on the "horse-camel-mirror-ring-rattle" device.

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"sticker face Rogan". She was cracking herself up.  PARENTAL FYI: do not give a 2 year old stickers.

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Rogan got a pretty Gerber Daisy from her Dada for Valentine's Day... walked around with it in the snow for 20 minutes... then proceeded to surgically remove each petal. "He loves me... he loves me...."

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Clifford The Big Red Dog from her Auntie & Uncle in NYC:

Mom's shoes. "Mama hoos"!

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Case was in the kitchen the other day.... and Rogan was making laps between her bedroom and our bedroom... a random item in hand each visit. She went to check on Coco, who was playing peacefully by herself (or so she thought) on our bed.... and unbeknownst to Casey, Rogan was slowly but surely, lovingly burying Coco... one random object at a time.

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The Girls. Waiting for Dr. Druzgal at clinic. (she's the woMAN!)

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Rogan lost her Great Grandmother, Anne Lutterloh Bynum Crawford, on Sunday. She would have been 96 fabulous years young on March 14th. Respect.

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8 comments:

Kristy said...

Your girls are darling! I sure hope the next two years seems like a breeze compared to what you've been through.
Love, Aunt Kris

Beth said...

GO Rogan .... you are doing a fabulous job of getting better. Sounds like mama and dada have been excellent caregivers to you and deserve a pat on the back for helping you reach this major milestone. Kudos Casey and Corey.
I enjoyed my visit with you, thanks for showing me all your princesses.
Sorry to hear about your Grandma Crawford.
Hugs and Kisses

suzana said...

Yay! Good job Rogan! You and your little sister are so stinkin' cute! I hope this means I get to see you soon!
Love ya!
XXOOXXOO
Auntie Suzan

Currie said...

Great progress Rogan- next pic we'll probably see you surfing down that mound of snow your Dad sculpted.

We're sorry to hear about Charle's Mom- she certainly had a flair for life and 96 years of it!!

Best to you all!

KATE (QUINN) SCHROEDER said...

you all look great! Happy birthday to Casey and Kaia! So fun that you "share" your bday, and I shared one with her great-G'ma! Pisces rule!

Amy said...

I'm so sorry to hear about Grandma Crawford.....Your girls are beautiful. I think I say that every time I leave a comment but it's so true. Way to go all of you! Rogan, you are so strong and your parents are two amazing people for what they do!

Dianne Young Erwin said...

Congrats ROGAN! We are so happy to hear the good news. We love reading about your progress and we soak it all in. I love hearing what you guys are doing.

Corey so sorry to hear about your Grandmom but it sounds like she is at home now.

Thinking of you all always.

Julianne said...

Love all the new pictures... your girls are so beautiful. What a nice daddy to give his little valentine flowers :) So, so, so, sorry to hear about your Grandma...

XO
Julianne