Obviously Monday was a big one and she has felt rough ever since. Nauseous and has barely eaten... random bouts of roid rage... and plenty tired. She has been sleeping through the night 70% of the time though... which is good for everyone. [scratch that for now... she was up every hour last night]. She barfed on the way down the canyon this AM en route to our 8:30 clinic and we had to pull over in the middle of a snow storm on the exit ramp. All hands on deck for a rapid roadside clean up... and the whole fam rolled into clinic late, smelling awesome.
She saw Santa but wasn't impressed. His elf gave her a bear and she mustered a "bye-bye". She scored another cool hat off the clinic hat tree... took down some detailed notes regarding her blood counts... then received her PEG shot.
Rogan's thorough notes helped me put this together tonight. A look at how her blood counts have fluctuated since her 8/2/2008 diagnosis. Wow.
Here is a shot from Monday's clinic... sad that this is one her favorite things to do. If you come to our house [100% healthy and sterile] you are guaranteed a free check up from Rogan MD.
Here are the girls. Rogan loves strawberries.. she calls them "gomm bees" [see the post from 9/20... Strawberries helped us get her walking again!]
Rogan likes to throw Elmo, Cookie and Coco in her stroller.
A couple minutes alone and Rogan had gnawed through a few crayons. Yikes.
Rogan picked out our Christmas tree. We decorated it with pics of our extended family, as we will be quarantined again by then and will not be able to see them. She loves to re-arrange the ornaments daily.
She likes to comb her hair... it's growing back a little... but will get wiped out again with start of the steroid.
And that is it for now! Thanks for reading and for your continued support. This will be a tough 8 weeks and we are staying hopeful that Rogan continues to respond accordingly and we only have to go to Primary's for our scheduled clinic days. Thanks for the love and positivity. // Crawford